Tuesday

Hello friends,
Just a quick update today to let you know that Joshua is doing well. He has hit the 20 pound mark! He started his IVIG yesterday. That is the first process of the 4 week long immune suppression regimen. They are basing it off of data from older kidney patients. There is no real data for doing this in young heart children. The hope is that this will help him better accept his new "angel heart".
He is supposed to work with OT/PT today and try some oral feeding. He is very cranky, so I am not sure that it will happen. The IVIG is a lot of extra fluid so he is working harder to breathe. He will get an extra dose of IV lasix soon and hopefully that will help him pee of some unneeded fluid.
I will update again soon. He is screaming and I need to go tend to him.
Leah