It is so hard to believe how fast time can get away from you sometimes.
I am just downloading some pics for all to see. :0) Check slideshow at bottom of page.
Joshua is doing pretty well. The drain is still in place. He slept all day yesterday and a good portion of today. I stayed a the house all day so that I could attempt to get caught up on some work. I think I will be working most of the weekend. Chances are he will sleep, so it will work out well.
His #'s are great and he is off the oxygen. The milranone also was turned off today. So far his BP is fine. He seems to really be perking up.
Blessings,
Leah
Saturday, August 30, 2008
Wednesday, August 27, 2008
Chylous
That is the verdict. 70 cc's have drained so far.
He did very well during the procedure. He was given drugs to make him very tired and forgetful but they don't completely knock them out when they put in the drains because they want them to breathe on their own. He was a little mad about the restraint holding his arm in place above his head than the poking. He got an extra bolus of delaudid and is sleeping soundly right now.
He has great #'s.....
HR: 145
BPM: 29
O2: 84
Maybe he can loose the oxygen again. (It was gone for 3 days but when the effusion built up his sats kept dropping and he had to go back on.)
They can't get Monogen (formula) for him until morning so they are just going to start fluids for him tonight. I will let you all know how he is doing in the AM.
I am waiting for Dr Law to come and talk to me. They are not sure what caused the effusion. The thought is the change in pressures. They may want to collect more "data" by doing an echo, but that call will be made by Dr Law. It is, unfortunately, very busy with VERY critical patients tonight so he will be here late and was asked to consult before leaving.
Leah
He did very well during the procedure. He was given drugs to make him very tired and forgetful but they don't completely knock them out when they put in the drains because they want them to breathe on their own. He was a little mad about the restraint holding his arm in place above his head than the poking. He got an extra bolus of delaudid and is sleeping soundly right now.
He has great #'s.....
HR: 145
BPM: 29
O2: 84
Maybe he can loose the oxygen again. (It was gone for 3 days but when the effusion built up his sats kept dropping and he had to go back on.)
They can't get Monogen (formula) for him until morning so they are just going to start fluids for him tonight. I will let you all know how he is doing in the AM.
I am waiting for Dr Law to come and talk to me. They are not sure what caused the effusion. The thought is the change in pressures. They may want to collect more "data" by doing an echo, but that call will be made by Dr Law. It is, unfortunately, very busy with VERY critical patients tonight so he will be here late and was asked to consult before leaving.
Leah
Update Wednesday
They will be tapping his chest at 6 pm PST. They are not sure if they will be placing a drain tube or just draining what is in there. I will let you know how it goes when it is over.
Wednesday~~~ DAY 91
*sigh* Well.....Joshua was doing great for quite a few days. I have some great pictures that I need to get posted. Hopefully tonight or tomorrow. I am pretty busy with work right now, but will try and get to it soon.
We just found out that Joshua has a lot of fluid in his chest. They are going to tap him and put in a drain. This will make him more comfortable and will make it easier for him to breathe. The bad thing is where the fluid is coming from and the cause. Dr Baden is concerned that it is coming from his valve. He is consulting with the cardiologists now. I was really hoping that we would be able to start our migration to the floor and go home but this will certainly set us back.
This all just progressed this morning. He was doing so well!
Thank you for your prayers of healing and comfort for Joshua!
Blessings,
Leah
We just found out that Joshua has a lot of fluid in his chest. They are going to tap him and put in a drain. This will make him more comfortable and will make it easier for him to breathe. The bad thing is where the fluid is coming from and the cause. Dr Baden is concerned that it is coming from his valve. He is consulting with the cardiologists now. I was really hoping that we would be able to start our migration to the floor and go home but this will certainly set us back.
This all just progressed this morning. He was doing so well!
Thank you for your prayers of healing and comfort for Joshua!
Blessings,
Leah
Thursday, August 21, 2008
Thursday
I actually can see a speck of sun. :) It has rained non stop here for the last three days. I didn't realize how much of an effect that has on a person emotionally. In Montana we don't have days that are so gray, it more or less just and goes and usually doesn't last very long.
Joshua is still about the same. He has a little more fluid on board which from the mommy perspective is a good thing. I have never looked at him and seen a sick baby. This week, I have. He looks like he has a sick heart. It has been a very hard transition for me. Almost like a reality check. We are still unsure as to what is happening. Maybe withdrawal, maybe his heart is just really sick, maybe he has an infection, maybe....maybe....maybe....
On a positive note. He looks like he is breathing easily. His #'s are pretty good. Heart rate is still higher than we would like and he keeps getting these darn fevers. You will see our cooling system in the picture. (He actually really likes the cool cloths. He like the head one over his eyes....strange.) Over the last several days he has been throwing up often. It appears that he had some changes in his medication again that we will need to discuss. Since yesterday it seems to have subsided for the most part.
I will keep you posted.
Leah
This was still on the vent. It was actually taken right before he was extibated.
This one was taken yesterday. He hasn't been awake much since he was extibated.
Joshua is still about the same. He has a little more fluid on board which from the mommy perspective is a good thing. I have never looked at him and seen a sick baby. This week, I have. He looks like he has a sick heart. It has been a very hard transition for me. Almost like a reality check. We are still unsure as to what is happening. Maybe withdrawal, maybe his heart is just really sick, maybe he has an infection, maybe....maybe....maybe....
On a positive note. He looks like he is breathing easily. His #'s are pretty good. Heart rate is still higher than we would like and he keeps getting these darn fevers. You will see our cooling system in the picture. (He actually really likes the cool cloths. He like the head one over his eyes....strange.) Over the last several days he has been throwing up often. It appears that he had some changes in his medication again that we will need to discuss. Since yesterday it seems to have subsided for the most part.
I will keep you posted.
Leah
This was still on the vent. It was actually taken right before he was extibated.
This one was taken yesterday. He hasn't been awake much since he was extibated.
Tuesday, August 19, 2008
Tuesday
Hello,
Just a quick little message to let you know that Joshua is doing ok. He continues to spike fevers. They are pretty sure they are just related to heart failure. He has been really urpy today. When I got to the hospital today, I was a little worried. He was not looking too good. I think they pulled too much fluid from him. He reminded me of a wrinkly old man, not the robust, round chunky baby I am used to. I could even see his neck.....didn't know he even had one!! =)
His sats are good, still in the 80's. He is not having any issues breathing but he continues to cough up a lot of yuck. His heart rate was a little higher today. More in the 160's - 170's. He was even in the 180's today when his fever spiked. He hit 39.3 and we pulled out cold cloths. He came down quick so we didn't need to bring out the ice packs. I have a few pics that I will try and get up later this week.
I can't believe that summer is already coming to an end. Trevor will be starting school soon. Can't believe that I have been here from the last day of school to the first. NUTS. I am sure that he will do well, and I just keep thinking I have many more first days of school to experience with all the kids. I am trying to get the girls up here for a bit. I miss them both BUNCHES! I have only seen Shyla once this summer and I haven't seen TD since we left in May. I hate having my family spread all over, but I know that we are all strong enough to make it through this. We all just want Joshua to be all right. Please pray that he continues to heal and that the Dr's will have some direction as to his care. Also please pray for our family as we continue to struggle through this journey and that we can all find peace and the strength to ask for help when we need it.
Leah, for the Garrisons
Just a quick little message to let you know that Joshua is doing ok. He continues to spike fevers. They are pretty sure they are just related to heart failure. He has been really urpy today. When I got to the hospital today, I was a little worried. He was not looking too good. I think they pulled too much fluid from him. He reminded me of a wrinkly old man, not the robust, round chunky baby I am used to. I could even see his neck.....didn't know he even had one!! =)
His sats are good, still in the 80's. He is not having any issues breathing but he continues to cough up a lot of yuck. His heart rate was a little higher today. More in the 160's - 170's. He was even in the 180's today when his fever spiked. He hit 39.3 and we pulled out cold cloths. He came down quick so we didn't need to bring out the ice packs. I have a few pics that I will try and get up later this week.
I can't believe that summer is already coming to an end. Trevor will be starting school soon. Can't believe that I have been here from the last day of school to the first. NUTS. I am sure that he will do well, and I just keep thinking I have many more first days of school to experience with all the kids. I am trying to get the girls up here for a bit. I miss them both BUNCHES! I have only seen Shyla once this summer and I haven't seen TD since we left in May. I hate having my family spread all over, but I know that we are all strong enough to make it through this. We all just want Joshua to be all right. Please pray that he continues to heal and that the Dr's will have some direction as to his care. Also please pray for our family as we continue to struggle through this journey and that we can all find peace and the strength to ask for help when we need it.
Leah, for the Garrisons
Monday, August 18, 2008
Monday Day 82
HE IS OFF THE VENT!!!!!
PRAISE THE LORD!
They extibated him about an hour ago. He is doing great! He is satting 80+%, heart rate in the 150's, bmp 33-37 and he does have a mild low grade temp. All in all I think he is doing very well. He is sleeping soundly, as he has for several days. I have asked them to wean the Ativan a little more so that he won't be totally snowed.
Dr Mazor is the attending on shift. He is still very worried about the regurge in his valve. He said that he is still going to be very watchful over him until he feels confident that he can go to the floor. When quizzed about how long he thinks we need to stay in the hospital he said it would be good to be home before Christmas. It was very unclear to me as to whether he was joking or not. I didn't have the heart to ask.
James and Trevor made it home safely last night. Trevor was a little freaked out on this flight. He said "it was bumpy and the plane kept dropping out of the air." :-) James said it was fine.
Love and blessings,
Leah and Joshua
PRAISE THE LORD!
They extibated him about an hour ago. He is doing great! He is satting 80+%, heart rate in the 150's, bmp 33-37 and he does have a mild low grade temp. All in all I think he is doing very well. He is sleeping soundly, as he has for several days. I have asked them to wean the Ativan a little more so that he won't be totally snowed.
Dr Mazor is the attending on shift. He is still very worried about the regurge in his valve. He said that he is still going to be very watchful over him until he feels confident that he can go to the floor. When quizzed about how long he thinks we need to stay in the hospital he said it would be good to be home before Christmas. It was very unclear to me as to whether he was joking or not. I didn't have the heart to ask.
James and Trevor made it home safely last night. Trevor was a little freaked out on this flight. He said "it was bumpy and the plane kept dropping out of the air." :-) James said it was fine.
Love and blessings,
Leah and Joshua
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