Just a quick update to let you all know what is happening. Josh remains stable. Not too many changes. They tried to wean him down on the nitric and the oxygen. He didn't take to it too well. He is now paralyzed with VEC again. He was dipping down to the 50's and that is just not ok. He did get to have some tummy time and he seemed to really enjoy that, then he desatted and ended that fun. So...he is now all doped up again....darn it.
They will talk about him again at conference on Monday and see what they can come up with. Dr Baden didn't have a lot of answers today. He commented that we want his pulmonary arteries to grow....but as he grows he is also outgrowing his shunt. So this is a catch 22. We will see what happens on Monday.
Trevor and Theresa will be heading home with mom and dad tomorrow. It was great having them here and I am SOOOO thankful that Theresa was able to come and allow Chubs to be here with me. He really enjoyed himself and said he felt very safe when she watched him. I think that is a great compliment. :) I think that they will now share a bond. If nothing, it was good for the laughs, he really had some good "Trevorisms" while we were all here.
I will post more soon. Please pray for safe travel for our family as they all head back to Missoula and that Joshua can get his sats up so that we will have time to figure out his next course of action. Emotions are running high right now for all of us. Please pray that we can all find comfort and peace and that we can turn over the hard stuff to the Lord. Sometimes we just need to lighten the load.
Love and Blessings,
Leah
