To just keep Joshua stable.
They are not making too many changes today. They all feel like he is better off today than he was yesterday and that he needs to get at least one good stable day under his belt before any changes are made. He may have to go on an oscillator ventilator if his lungs get much worse. His xray was worse this morning compared to yesterday. More than likely from the extra fluid. He has not been peeing very much the last few days.
Joshua kept everyone VERY busy yesterday. My attitude (and mommy rule for Joshua) has always been 'as long as we are not the hottest fire in the CICU'....well yesterday Joshua broke the 'rule'! It was a scary long day and I am glad to say that I feel better about things today. He has had great nurses which helps put me at ease.
Dr Law also came by today. The respect that I have for that man is unmeasurable! He said that we are so lucky to have had such a "perfect, custom made donor match" especially at this point. He didn't need plasma phresis and his anti rejection medication is really pretty low. Both of this things in conjunction with ECMO and the sepsis would have really complicated things and would have made it a lot harder for him to fight the infection off. I give PRAISE and THANKS to the Lord for this miracle!!! (He did say that they were going to accept the organ anyway even if it wasn't such a good antibody match (they felt there were things they could do like phresis to work around that)....but they were amazed when it came the antibody tests came back!)
Last night he did have some bleeding around one of his chest tubes. His RA line fell out of his heart but it ended up to not be a big deal. The surgeons removed it this morning. He also had a another stitch added so there wasn't so much play around his chest tube.
He still remains on boluses of Vec, Dilaudid and Ativan. He will be very sedate and paralyzed today. He is also getting the Nitric Oxide today. He has not had a fever in the last 36 hours or so.
I will update you more as the day goes. I am hoping for a quiet, low key day!
6 comments:
Thank you so much for the update. Pray, Pray, Pray is what I have done lastnite and today. Glad to read a more relaxed update. Will keep praying.
Lois
Also praying for a quiet, low-key day for Joshua (and you) as well. I'm coming over there this weekend, will be there Sunday for the big CHD support group meeing downstairs. I'll stop by the ICU waiting room and will give you a call, we can meet if you feel up to it. Just know that your sweet boy is on my mind and I'm sending many prayers your way...hang in there!
Love,
Katie (Maddie's mom)
Leah and James,
Just a few Words for you to chew on:
"Since then we have a great high priest who has passed through the heavens, Jesus the Son of God, let us hold fast our confession. For we do not have a high priest who cannot sympathize with our weaknesses but one who has been tempted in all things as we are, yet without sin. Let us therefore draw near with confidence to the throne of grace, that we may receive mercy and may find grace to help in time of need." Hebrews 4:14-16
"Fixing our eyes on Jesus, the Author and Perfecter of faith, who for the joy set before Him endured the cross, despising the shame, and has sat down at the right hand of the throne of God." Hebrews 12:2
Praying so hard for all of you...
Blessings~
suzie
We are praying hard for Joshua and you as well!! Pee Joshua, PEE!!!
Andrea
simmonsfamilyupdate.blogspot.com
i am just continuing to check on you.....I love THE Hands comment to you. Who better to call on then the High Priest of all....Praying for Joshua to continue to endure. And for you to again.
BY FAITH,
Dianna
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